THE parents of a teenager who lost her fight against a rare form of cancer last year are organising a family fun day in her memory.
Chloë Venton battled Ewing’s sarcoma after her diagnosis in May 2018 and seemed to be doing well. But her condition deteriorated and last spring she was told she had acute myeloid leukaemia.
She died on July 28 aged just 17.
Now her mum Joanne and dad Gary, along with brothers Jack, 15, and Ryan,16, want to mark the first anniversary of Chloë’s death by raising awareness of bone cancer and generating money for a children’s cancer charity.
Joanne, from Park South, said: “It’s something we looked at doing before Chloe died as we have always been very family orientated but we never got around to it. But we were always going to do it.”
Gary said: “She was in and out of hospital but she was doing really well and having treatment.
Chloë, who wanted to become a paediatrician, completed chemotherapy. But due to the position of the sarcoma at the bottom of her spine she was unable to have surgery.
Radiotherapy treatment could have harmed her organs so she was sent to America for proton beam therapy towards the end of 2018.
Joanne said: “We went back and forth from the GP’s to get a diagnosis, we were told it was a pulled muscle. I refused to leave until they did more because Chloë had lost sensation in her hips and upper legs.”
Her parents believe that an earlier diagnosis would have made a huge difference and is key to successful treatment of the disease.
Joanne said: “We had never heard of Ewing’s sarcoma before. All childhood cancer is classed as rare but when you’re in that world it isn’t rare.”
Gary added: “We want as much awareness as possible. No one should have to go through what we had to and it’s what Chloë would have wanted, to get the awareness out there and have fun.”
The teenager died without knowing that all her hard work in her science A levels during her treatment had earned her an A in chemistry.
The college gives an award every year in honour of Chloë to a student who embodies her traits such as determination, aspiring and a positive attitude.
The fun day on July 31 at Greenbridge Rugby Club will raise money for Chloë’s Fight with Ewing’s and Calm, a charity that supported the family.
“They did a lot for Chloë and gave her a chance to meet people outside of hospital as she didn’t see many teenagers with it,” Joanne said.
“She was the most kind-hearted and caring person. She put everyone before herself and she was always having a laugh.”
It will feature information on cancer as well as the George Scarrott Fun Fair, stalls, carnival games, a raffle, fireworks and Chloe’s favourite lollipop game. It will be from 10 am until late.
Gary said: “It’s free entry so people can come to look around and spend what they would like. This is just a one-day event but if it’s successful we want to it every year over a weekend and bring bigger rides.”
To book a stall email chloësfight18@gmail.com or the Facebook page Chloës Fight with Ewing’s