Chronic myeloid leukemia support groups: Adults, children, and more

People with chronic myeloid leukemia (CML), or friends and family of people with the condition, may find a support group helpful. Support groups can connect people with others going through a similar experience and provide insight into specific challenges people may face.

There are many different support groups available for those experiencing CML on their own, or through a loved one.

In this article, we look at the benefits people can experience from joining a support group, and list a range of support groups that are appropriate for adults and children living with CML and their families and friends. There are also culturally competent groups and those specific to those in the LBGTQIA+ community.

Read more about coping with a cancer diagnosis here.

Joining a CML support group can provide many benefits for people with CML, as well as their friends and family. A CML support group can:

provide mutual support bond with people who are going through similar experiences give people the opportunity to talk freely about how they are feeling and talk about any fears or concerns they may have coping strategies and practical advice provide support to family and friends of people with CML, and increasing their connection and understanding of a person going through CML, providing information, education, and resources so that people feel less alone

Read more about the different stages of CML here.

The following support groups may be helpful for adults with CML.

The National CML Society: CML Connection

CML Connection is a support network that manages groups in the United States. The support groups welcome anyone with CML, as well as family members and caregivers.

The groups provide people with a connection to others going through CML, the chance to learn and discuss the latest CML news, and the opportunity to discover how the Society can best support individual needs.

People can find more information here.

Cancer Care: Blood Cancer Patient Support Group

Cancer Care offers a free, virtual, 15-week Blood Cancer Patient Support Group. The group is open to anyone in the United States who is being treated for blood cancer. An oncology social worker leads the online group, which aims to:

reduce feelings of isolation and anxiety help people develop new coping methods increase feelings of hope and empowerment provide practical information for treatment and resources help people improve communication between their care team and loved ones

The group will start on October 1, 2021, but people can also join after this date. People can register here.

Leukemia and Lymphoma Society’s Support Groups

The Leukemia and Lymphoma Association support groups offer people with leukemia or lymphoma the opportunity to meet other people who have been through the same experience. They are open to anyone affected by a blood cancer diagnosis, including patients, family members, and caregivers.

Groups are free and usually meet once a month.

Read more about leukemia in adults here.

The following support groups may be helpful for children or young adults living with CML.

Young Adult Survivors United

Young Adult Survivors United (YASU) has a support group for people ages 18-39 diagnosed with cancer. They provide local and national support to create a sense of community and prevent people from feeling isolated.

The support group currently holds two virtual sessions per week.

YASU provides financial aid to those who meet certain criteria and offers grants of up to $500 to help with the financial costs of living with cancer.

YASU also offers monthly social activities, a book club, a prayer group, and workshops. All support groups and events are currently virtual.

Other YASU support groups include:

the Young Adult African American Cancer Support Group the Co-Survivor Support Group, for anyone caring for or supporting a young adult cancer patient the Grief Support Group, for anyone who has lost a young adult to cancer

People can find more information here and register their interest on the website.

stupid cancer

While not a support group, Stupid Cancer has a series of digital gatherings for young adults to connect with others who are having similar experiences.

Read more about childhood leukemia here.

The following groups provide specialized support to people belonging to specific cultural groups.

Latins against cancer

Latinas Contra Cancer provides support groups for the Latino community. They hold monthly support groups that provide psychosocial support groups in Spanish for people diagnosed with cancer and their families.

The groups welcome and appreciate Latino culture and language. The support groups cover topics such as:

the impact of cancer on the family improving communication balancing physical and emotional needs insight into mental health problems such as depression anxiety and stress management intimacy and cancer spirituality and cancer

Latinas Contra Cancer also hosts community events such as free spa days and family events to encourage self-care and a healthy lifestyle.

Latinas Contra Cancer is located in Santa Clara County and people can find out more information through their website.

Cancer Support Community: African American Fellowship

The Cancer Support Community African American Fellowship is a support group for anyone who identifies as black or African American. The group welcomes people diagnosed with cancer, family members and friends, or those who have lost a loved one to cancer.

The free, virtual support group runs twice a month. The meetings take place on Zoom. Professional guides lead the group and people need to register first through the form.

The following groups can provide support for adults or children belonging to the LGBTQIA+ community living with CML.

Cancer Support Community: Pride Cancer Support Group

Cancer Support Community runs a Pride Cancer Support Group for people in the LBGTQIA+ community. The group is for those diagnosed with cancer and loved ones, and welcomes anyone who identifies as:

bisexualgaylesbiannon-binaryqueertransgendertwo spiritsany other sexual or genderminority

The group meets almost every month. People can find a local group here.

Young Adult Survivors United and F Cancer: LBGTQIA+ Support Group

Let’s F Cancer and Young Adult Survivors United have come together to provide a support group for anyone who identifies as LBGTQIA+ and is either undergoing post-treatment or treatment for cancer.

The support group aims to provide a safe space for people to share their experiences and find a sense of belonging, compassion, and comfort.

The group will meet virtually every month on Zoom from May 4, 2021. A registered oncology social worker facilitates the group. People can register here.

The following support group may be helpful to the friends or family of people living with CML.

The Leukemia and Lymphoma Society’s Family Support Groups

The Leukemia and Lymphoma Society (LLS) provides support groups for people affected by blood cancers. The LLS Family Support Group provides a caring, comfortable environment for families to discuss their feelings, learn and share information.

The LLS Family Support Groups are free and usually meet once a month. Two healthcare professionals run the group, who are experienced in oncology and group work and can handle sensitive topics.

The LLS currently has 130 local groups in the United States and people can use this search to find one in their area.

Read more about home care for leukemia here.

Support groups can provide a range of benefits for people with a CML diagnosis, as well as family members, friends, and caregivers.

Support groups are not a substitute for any form of psychotherapy, but they can be a valuable coping tool and a source of support.

Support groups can help people feel less alone, connect with others, express their feelings, and get practical advice.

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