Charity walk raises money for research, supports local boy battling genetic disorder

RICHMOND, Va. (WRIC) – On Saturday, the Children’s Tumor Foundation held a “Shine a Light NF Walk” at Henrico’s Deep Run Park to benefit children suffering from neurofibramatosis (NF), a genetic condition that causes tumors to form on the body. nerves.

Among those in attendance was Gabriel Bratton, 10, who was diagnosed with NF at 4 months of age but recently started new treatment that allowed him to regain use of his right hand.

“It’s like a tree, so this is like its roots and it’s entwined in the nerves and it’s very dangerous,” said Gabriel’s mother Julie Cranor. “So taking the medication was a good idea, really — it would help or it wouldn’t.”

That drug is Koselugo, the first FDA-approved treatment for inoperable plexiform neurofibromas, the type NF Gabriel has. While there is currently no cure, the CFT said in a press release that Gabriel’s tumor has shrunk by 20 percent.

After more than a year on Koselugo, Cranor said, “It was great.”

When asked how he was feeling, Gabriel simply said, “Good!”

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The walk was organized in part by Team Gabriel, who promoted NF with events like this one, and “walk and raise money in his honor”.

“We couldn’t be more grateful for an event like the Shine a Light NF Walk,” Cranor said. “It made us realize how many people in our community are fighting like Gabriel.”

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